Meet the Patient
Advocacy Organizations
DR HOMIRA
OSMAN
Dr Homira Osman is the VP of Research & Public Policy at Muscular Dystrophy Canada. Her background is in clinical audiology, neuroscience research and knowledge translation. In her role, Dr. Osman has overall strategic and operational responsibility for all elements of research, knowledge translation, clinical relationships and advocacy work at MDC. Homira is the co-lead of the Neuromuscular Disease Network for Canada.
PR IGNACIO
ESCUDER-BUENO
Ignacio Escuder-Bueno is the Secretary of the Board of ASMIC, which stands as a non-profit association committed to enhancing the quality of life for individuals affected by Congenital Myasthenic Syndromes (CMSs) and providing support to their families and loved ones.
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Ignacio joined ASMIC Board in January 2016, just a few months after ASMIC had been founded in Barcelona (Spain) in 2015, and has been promoting and participating in a large number of events promoted by ASMIC (including workshops, webinars and patient meetings). He also represented ASMIC at the 260th ENMC International Workshop on Congenital Myasthenic Syndromes held in Naarden, The Netherlands, on March 2022.
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He is a Professor in Hydraulic Engineering at the Polytechnical University of Valencia (Spain), loves skiing, running and spending as much time as possible with his family and friends.
