PROMOT outlines its 2026 vision – advancing research, strengthening patient partnerships, and uniting globally to drive rare disease progress.

As 2025 comes to a close, we want to extend our heartfelt gratitude to all our patient partners, clinicians, researchers, and collaborators across the globe. Your dedication continues to drive our shared mission forward and brings real hope to families living with rare neuromuscular diseases.

Highlighting Dr. Anita Burgun, PROMOT partner advancing data interoperability and collaboration in rare disease research

PROMOT advances research on CMS, CM, OPMD, and MFM – four rare neuromuscular diseases – by filling critical data and research gaps