Explore what PROMOT’s scoping reviews revealed about CMS and CM – and how these insights are shaping future rare disease research and data models.

We invite you to learn more about the individuals who are helping shape PROMOT’s mission. Our patient and family partners come from diverse backgrounds and bring a wealth of insight, resilience, and motivation to this work. Discover why they chose to join the PROMOT Network, what inspires their involvement, and the changes they hope to see in rare disease research and care.