We invite you to learn more about the individuals who are helping shape PROMOT’s mission. Our patient and family partners come from diverse backgrounds and bring a wealth of insight, resilience, and motivation to this work. Discover why they chose to join the PROMOT Network, what inspires their involvement, and the changes they hope to see in rare disease research and care. 

This past June, the PROMOT team came together in the stunning city of Barcelona, Spain, for an inspiring kick-off meeting.

We’re excited to launch the official website for Performing a Rare Disease-Oriented Master Observational Trial (PROMOT).