top of page


Partner Spotlight: Dr. Anita Burgun
Highlighting Dr. Anita Burgun, PROMOT partner advancing data interoperability and collaboration in rare disease research
Nov 17, 20252 min read


Discover Dr. Cynthia Gagnon’s Interactive Illustrative CV!
Discover Dr. Cynthia Gagnon’s interactive, visual CV and her role in the PROMOT initiative for rare disease research and collaboration!
Jun 30, 20251 min read


Patients and Families at the Heart of PROMOT Research
We invite you to learn more about the individuals who are helping shape PROMOT’s mission. Our patient and family partners come from diverse backgrounds and bring a wealth of insight, resilience, and motivation to this work. Discover why they chose to join the PROMOT Network, what inspires their involvement, and the changes they hope to see in rare disease research and care.
Apr 23, 20252 min read
bottom of page
