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Behind the Scoping Reviews: What We Learned from Studying CMS and CM
Explore what PROMOT’s scoping reviews revealed about CMS and CM – and how these insights are shaping future rare disease research and data models.
Aug 6, 20253 min read
PROMOT Project: Progress Update – What We’ve Achieved So Far
Celebrating one year of the PROMOT Project – see how we’re advancing rare disease research through collaboration, data, and innovation.
Jul 29, 20252 min read
Discover Dr. Cynthia Gagnon’s Interactive Illustrative CV!
Discover Dr. Cynthia Gagnon’s interactive, visual CV and her role in the PROMOT initiative for rare disease research and collaboration!
Jun 30, 20251 min read
Patients and Families at the Heart of PROMOT Research
We invite you to learn more about the individuals who are helping shape PROMOT’s mission. Our patient and family partners come from diverse backgrounds and bring a wealth of insight, resilience, and motivation to this work. Discover why they chose to join the PROMOT Network, what inspires their involvement, and the changes they hope to see in rare disease research and care.
Apr 23, 20252 min read
The PROMOT Project: Advancing Research for Rare Neuromuscular Diseases on Rare Disease Day
The PROMOT project, launched in June 2024, is proud to align its mission with Rare Disease Day.
Feb 28, 20252 min read
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