top of page


Happy Holidays from the PROMOT Network!
As 2025 comes to a close, we want to extend our heartfelt gratitude to all our patient partners, clinicians, researchers, and collaborators across the globe. Your dedication continues to drive our shared mission forward and brings real hope to families living with rare neuromuscular diseases.
Dec 22, 20251 min read


PROMOT: Putting Patients at the Center of Rare Disease Research
Discover how the PROMOT project is transforming rare neuromuscular disease research through a patient-centered, multi-country approach. Learn about its innovative LEAP platform, interdisciplinary methods, and goals to identify new therapeutic targets.
May 20, 20252 min read
bottom of page
