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Patients and Families at the Heart of PROMOT Research
We invite you to learn more about the individuals who are helping shape PROMOT’s mission. Our patient and family partners come from diverse backgrounds and bring a wealth of insight, resilience, and motivation to this work. Discover why they chose to join the PROMOT Network, what inspires their involvement, and the changes they hope to see in rare disease research and care.Â
Apr 232 min read
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Welcome to the PROMOT Website!
We’re excited to launch the official website for Performing a Rare Disease-Oriented Master Observational Trial (PROMOT).
Dec 7, 20241 min read
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