PROMOT outlines its 2026 vision – advancing research, strengthening patient partnerships, and uniting globally to drive rare disease progress.

As 2025 comes to a close, we want to extend our heartfelt gratitude to all our patient partners, clinicians, researchers, and collaborators across the globe. Your dedication continues to drive our shared mission forward and brings real hope to families living with rare neuromuscular diseases.

This past June, the PROMOT team came together in the stunning city of Barcelona, Spain, for an inspiring kick-off meeting.