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Patients and Families at the Heart of PROMOT Research
We invite you to learn more about the individuals who are helping shape PROMOT’s mission. Our patient and family partners come from diverse backgrounds and bring a wealth of insight, resilience, and motivation to this work. Discover why they chose to join the PROMOT Network, what inspires their involvement, and the changes they hope to see in rare disease research and care.Â
Apr 232 min read
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The PROMOT Project: Advancing Research for Rare Neuromuscular Diseases on Rare Disease Day
The PROMOT project, launched in June 2024, is proud to align its mission with Rare Disease Day.
Feb 282 min read
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Back to Where It All Began: Barcelona!
This past June, the PROMOT team came together in the stunning city of Barcelona, Spain, for an inspiring kick-off meeting.
Jan 131 min read
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