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PROMOT’s Vision for 2026: Where Are We Heading?
PROMOT outlines its 2026 vision – advancing research, strengthening patient partnerships, and uniting globally to drive rare disease progress.
Jan 122 min read
Happy Holidays from the PROMOT Network!
As 2025 comes to a close, we want to extend our heartfelt gratitude to all our patient partners, clinicians, researchers, and collaborators across the globe. Your dedication continues to drive our shared mission forward and brings real hope to families living with rare neuromuscular diseases.
Dec 22, 20251 min read
Partner Spotlight: Dr. Anita Burgun
Highlighting Dr. Anita Burgun, PROMOT partner advancing data interoperability and collaboration in rare disease research
Nov 17, 20252 min read
Inside the Common Data Model: What It Is and Why It Matters for Rare Neuromuscular Diseases
Discover how PROMOT’s Common Data Model is transforming rare disease research through data standardization and cross-border collaboration.
Sep 22, 20253 min read
Behind the Scoping Reviews: What We Learned from Studying CMS and CM
Explore what PROMOT’s scoping reviews revealed about CMS and CM – and how these insights are shaping future rare disease research and data models.
Aug 6, 20253 min read
PROMOT Project: Progress Update – What We’ve Achieved So Far
Celebrating one year of the PROMOT Project – see how we’re advancing rare disease research through collaboration, data, and innovation.
Jul 29, 20252 min read
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